Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
Please allow me to introduce myself…
In 2023, I retired from being a full time middle school music teacher. I loved it and would do the whole 28-year gig again if I could. So many amazing kids and colleagues. SO...now as I am in my 50's, I have pivoted away from music, and I focus on advocacy for individuals living with … Continue reading Please allow me to introduce myself…
AFTER THE LASAGNA
The title is a reference to someone passing. Yeah you read that correctly. What the hell does death have to do with lasagna? Welcome to today's lesson. Just like I used to tell my students: I'm not going to teach you WHAT to think, I'm attempting to teach you HOW to think. Today, let's think … Continue reading AFTER THE LASAGNA
LET’S TALK TURKEY
Seriously. I want to talk turkey here. Real turkey, with a dialect and everything. Specifically, a New England dialect with a dollop of western New Hampshire woods and a smattering of fright from the axe of a Pilgrim. Each version of my wife is lovable and anyone who is in a relationship will tell you … Continue reading LET’S TALK TURKEY
Early Days
You know that sound and feeling you get when cracking a knuckle on purpose? The little pop and a split second sensation of something inside your finger adjusting? It felt like that, but two muffled pops, a half spin as I tried to brace myself with my arms on an large instrument case, and I … Continue reading Early Days
It Keeps Me Awake
Recently I was asked what keeps me awake at night. This question was posed to me in a group setting. Although the atmosphere was jovial, the question was anything but. As I listened to various people answer I noticed that some people fluffed off the question, while others spoke about themselves, but not one of … Continue reading It Keeps Me Awake
THE WORLD WAS BRAND NEW
Christmas Day 1982, Santa Claus brought me a boombox. For those of you that are too young to know what I am talking about, check out this outstanding video. It was a Sony, and it had a tape deck. This meant that I could, for the first time, record my favorite songs directly from the … Continue reading THE WORLD WAS BRAND NEW
A LONG WEEKEND
Here's one: In April of 2011, Vanessa and I had been dating for almost a year. Little by little I was revealing more of my nerd side: I am a space junkie. Not as in 'more room for stuff'...more like 'outer'. The heavens. Stars, planets and everything NASA. Both of us were teaching, and had … Continue reading A LONG WEEKEND
OH, WHAT A NIGHT
Late December back in '63.....What a very special time for me....I remember what a night. OK, song lyrics over. Go listen to it if you want to support that ear worm that I just gave you. For now, let me tell you about my latest travel experience. Vanessa and I travel when we can. I … Continue reading OH, WHAT A NIGHT
MY FIRST TIME
I think everyone remembers their first time. It can be nerve racking, and impossible to know how it will turn out when you've never had the experience before. Eyes studying you on a level that you are not used to, and being hyper aware of every movement and sound that you make, as well as … Continue reading MY FIRST TIME
IT’S ALL BEEN DONE AGAIN
So I guess this will be part 2 of what I wrote last week. I didn't plan on a follow up blog, but the information below came across my reading eyes and it is too timely not to share. If you missed last week's blog, you can refresh, but I wrote about history repeating itself … Continue reading IT’S ALL BEEN DONE AGAIN
IT’S ALL BEEN DONE
I might not be the best teacher that ever teached (ha), but let me share something with you that I have learned: nothing is new. It's all been done. These days, thanks to technology, everyone has a megaphone. It's all been done. It was the same when people figured out that they could draw on … Continue reading IT’S ALL BEEN DONE