When the Cards Aren't Fair, Change the Game.
Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
In 2023, I retired from being a full time middle school music teacher. I loved it and would do the whole 28-year gig again if I could. So many amazing kids and colleagues. SO...now as I am in my 50's, I have pivoted away from music, and I focus on advocacy for individuals living with … Continue reading Please allow me to introduce myself…
So, let me start with this. HERE is a fun website to see how your elected local official in New Hampshire voted on issues that matter to you. It's a trove of information that I think you should know. Politics is local right? If everyone is paying attention, even the local officials need to let … Continue reading ETHICS OF RECIPROCITY
"No one is normal. It only looks that way from across the street." This is a quote from the HBO/MAX show called DTF St. Louis. I found it to be dark, but funny, and pretty engaging. I'll spare you the full plot review because that isn't the focus of this plot. The point is that … Continue reading SITUATION NORMAL?
Dear Dad It's been a long time since I have written. Apologies. As you know, I have been pretty busy over here with several projects and getting ready to make mom a grandmother for the second time. My wife is feeling good as we approach the November due date. I know you will be keeping … Continue reading DEAR DAD (1)
Let's assume for a moment that you have enough money to pay your monthly bills for the next 12 months. You didn't win the lottery or anything like that, but you have enough that you could take one year off. What are you going to do for the next 12 months? Please comment on this … Continue reading BONUS POST: IT’S YOUR TURN
As I write these words, the sun is out, there is a bit of a breeze and it is a picture perfect late May morning in New England. Before typing, I searched "Uplifting Playlist" on Spotify. Most of it is predictable pop like "Don't Stop Believing" and "Send Me On My Way." Blah, blah, blah. … Continue reading THE SUN IS OUT
These days, information comes at us at an astonishing pace. It can be difficult to filter not only what is real and true, but what is also personal. Everyone everywhere wants your attention, your support, your protest, your money, your time, your interest, your effort, and your ear. We all amplify things that are near … Continue reading STAY QUIET?
As the wise movie character Ferris Bueller once told us: "Life moves pretty fast. If you don't stop and look around once in a while, you might miss it." That movie is 40 years old. Yup, life moves pretty fast. Ferris told us this before the internet, before cell phones and before on demand everything. … Continue reading STOP AND LOOK
The title is a reference to someone passing. Yeah you read that correctly. What the hell does death have to do with lasagna? Welcome to today's lesson. Just like I used to tell my students: I'm not going to teach you WHAT to think, I'm attempting to teach you HOW to think. Today, let's think … Continue reading AFTER THE LASAGNA
Seriously. I want to talk turkey here. Real turkey, with a dialect and everything. Specifically, a New England dialect with a dollop of western New Hampshire woods and a smattering of fright from the axe of a Pilgrim. Each version of my wife is lovable and anyone who is in a relationship will tell you … Continue reading LET’S TALK TURKEY
You know that sound and feeling you get when cracking a knuckle on purpose? The little pop and a split second sensation of something inside your finger adjusting? It felt like that, but two muffled pops, a half spin as I tried to brace myself with my arms on an large instrument case, and I … Continue reading Early Days
Moeschen! 