Real Stories.
Real Impact.
Several years ago, I traveled from Boston to Perth, Australia, to speak about living with a rare chronic illness. Afterward, a man shook my hand and, in a thick Australian accent, gave me the most memorable compliment I’ve ever received: “That was wonderful. When you began to speak, I thought, ‘Gee, this bloke is really switched on!’”
I’d love to bring that same mix of humor, personal storytelling, and a New England accent to your next event. Let’s connect.
Partners & Appearances
Parent Project MD Every Voice Speaks Muscular Dystrophy News United Nations
The Podcast
Every Voice Speaks
Working with The Speak Foundation, I cohost a podcast with Kathryn Bryant Knudson. Our episodes focus on uniting and empowering the muscular dystrophy community through guest’s personal stories, expert interviews on topics such as navigating health systems, and understanding drug development, clinical trials, and adult life in a society designed for people without a disability.
Speaking & Advocacy
Using lived experience to educate, inspire, and remind people they’re not alone.
Keynote Speaking
Thought-provoking presentations that combine real stories, practical insight, and the occasional laugh.
Media Appearances
Conversations on advocacy, healthcare, resilience, and finding perspective.
Writing
Personal stories, reflections, and insights on advocacy, connection, and life beyond the diagnosis.
Let’s Create Conversations That Matter.
Bringing perspective, connection, and the occasional laugh to audiences everywhere.