Leverage the hand you've been dealt
Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
In 2023, I retired from being a full time middle school music teacher. I loved it and would do the whole 28-year gig again if I could. So many amazing kids and colleagues. SO...now as I am in my 50's, I have pivoted away from music, and I focus on advocacy for individuals living with … Continue reading Please allow me to introduce myself…
I always laugh when people write prophetic things around this time of year (mid to late December). Telling me all of the things that will happen when the calendar resets on the first of January. Right. Go ahead and try to predict the future, and even more hilarious: try to control it. Even your own. … Continue reading 2025, HAIL AND FAREWELL
What is the saying? It takes a village to raise an idiot? One idiot can ruin the village? One idiot can raise a village? I am the idiot and ALL of you are the village. A few years ago, if you told me that I would appear live on stage without middle school band kids … Continue reading SHAMELESS BONUS POST
“Nothing is so privileged as thinking history belongs to the past” Excerpt FromEverything Is TuberculosisJohn Green If history took one minuscule wrong path from where you now read these words, you're not here. I'm not here. Let your brain ruminate on that for a moment while you realize how ridiculously lucky all of us are … Continue reading The THREAD
"And we call ourselves the human race..." John F. Kennedy Statement to Secretary of State Dean Rusk just after they had been given a military briefing on every city that would be wiped out with a nuclear bomb if war should break out, 1961. Well. I'm not really comparing the weight of JFK's words to … Continue reading YOU CAN’T MAKE THIS STUFF UP
As I type this bonus blog, it is December 1. This means Whamageddon 2025 is upon us. Not sure what I'm talking about? LOOK HERE. The website tells you all that you need to know. Please be careful and if and when you get Whammed, please let everyone know in the comments. Use caution and … Continue reading WHAMAGEDDON
If you are reading this on Thanksgiving Day, perhaps it is early and you have not gathered with family and friends yet. Perhaps it is after your celebration and you are now on your phone because it is your security blanket. Perhaps it is right NOW your family/friends meal but you just really need a … Continue reading GOBBLE GOBBLE 101
I could get very used to speaking in front of medical professionals, residents, fellows, and any other labels that society has placed on these humans who have been called. to FIRST, DO NO HARM. Recently, I spoke with a few hundred of them and explained how and why HARM had been DONE to me, not … Continue reading GRAND ROUNDS PART II
I am writing early this week to let you know why I will not be writing on Thursday. Got that? It's kind of like in the movie Spaceballs when the dude asks "When will then be now?" Answer: "Soon" I have been invited to Columbus Ohio this week to participate in something called Grand Rounds … Continue reading THURSDAY NOVEMBER 13, 2025
Recently the movie Back to the Future turned forty years old. Yikes. I saw it in the theater as a kid living in 1985. Fun fact: When Marty goes back in time by accident, he lands on November 5, 1955....the day that the fictional Dr. Brown invented the flux capacitor, which is what makes time … Continue reading BACK IN TIME
I have consumed 30 cheeseburgers this year but yesterday one of my old students met Mark Hamill who plays Luke Skywalker in Star Wars, and two days ago another old kid sent me a photo from Dodger Stadium where he attended game 4 of the World Series between the Los Angeles Dodgers and the Toronto … Continue reading WHAT ARE WE DOING?
Patrick moeschen 